News and Announcements

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General Information

Association of Maternal and Child Health Programs (AMCHP) Annual Conference

The 2017 Association of Maternal and Child Health Programs (AMCHP) annual conference will focus on inclusion, diversity, and non-traditional partnerships. Maternal and child health professionals will have the opportunity to attend sessions that will encourage cross-agency collaboration to advance pediatric medical home implementation at the state and local level.
Learn more about the conference

Webinar: Partnering with Diverse Dads

The American Academy of Pediatrics will host Partnering with Diverse Dads: Challenges & Successes on Monday, January 9th from 12:00 – 1:30pm Central. Experts will discuss strategies and tips for engaging diverse dads in all types of settings, including pediatric practices.
Register for the webinar

Emergency Readiness Toolkit

The Eunice Kennedy Shriver Center worked with an advisory committee of parents of children with special needs to create a curriculum that increases preparedness knowledge and allows for successful emergency planning. The curriculum includes a toolkit, tip sheets, and a template for a personal emergency plan. There are also resources on sharing information about a child’s unique needs with first responders. 
View the toolkit

Including People with Disabilities: Public Health Workforce Competencies

The Association of University Centers on Disability (AUCD) has developed a new resource that outlines recent advances in knowledge and practice skills needed by public health professionals for including people with disabilities in the core public health functions – Assessment, Policy Development and Assurance. 
View the resource

Innovations in Supporting Families Webinar

The National Community of Practice for Supporting Families of Individuals with Intellectual & Developmental Disabilities recently presented a webinar on Life Course in Action: Implementation at All Levels in Missouri. The webinar has been archived as a series of videos demonstrating implementation of life course tools at the individual and family, professional, organizational, community, and systems levels.
View archived videos
 

Funding Opportunity: Chronic Illness Self-Management in Children and Adolescents

The National Institutes of Health have announced a funding opportunity to encourage research to improve self-management and quality of life in children and adolescents with chronic conditions. The FOA encourages research that takes into consideration various factors that influence self-management such as individual differences, biological and psychological factors, family and sociocultural context, family-community dynamics, healthcare system factors, technological advances, and the role of the environment. Applications are due January 7, 2017.
View funding information (R01) and (R21)

Funding Opportunity: Pregnancy in Women with Disabilities

The National Institutes of Health have announced a funding opportunity to encourage research project grants investigating the incidence, course and outcomes of pregnancy among women with disabilities. Applicants are encouraged to include women with disabilities and members of the community in the design and conduct of their research. 
View more information

2017 Cross-Discipline Trauma Conference of Central Texas

This two day conference in Austin, TX May 11-12, 2017 will bring together mental health clinicians, physicians, school personnel, medical/nursing professionals, law enforcement, juvenile justice professionals, and occupational/physical therapists. The conference will provide expert guidance, education and continuing education units on the effects of trauma, as well as evidence-based practices in recognizing and treating trauma. 
Learn more and register

Success for Today and Tomorrow Conference: Accessing Disability Resources

The Success for Today & Tomorrow Conference will be held Saturday, February 25th, 2017 in College Station, TX. The event will feature local and statewide vendors, a parent/student panel and a motivational keynote speaker. Child care will be available for children ages 2-8 and there will be a free “Fungineering” session for children ages 9 and up.
Respond to the event invitation

Family Stories Photography Project

The Lucile Packard Foundation for Children’s Health recently family photo essays from a photography project that documents the lives of families who have children with disabilities or chronic medical conditions. Families are also invited to share their own stories on the project webpage.
View the stories

2017 Inclusion Works! Conference

The Arc of Texas will host the 2017 Inclusion Works! Conference February 12-14th 2017 in Houston, Texas. The event provides learning opportunities for parents, educators and school administrators to improve skills in collaborating to educate students who qualify for Special Education services.  
Learn more and register

Navigate Life Texas Regional Pages

The Navigate Life Texas Regional Pages include blog articles with facts and tips as well as local events, services and organizations and support groups.
Visit the site


Medical Home Information

Shared Plan of Care: A Tool to Support CSHCN & Families

The National Center for Medical Home Implementation and the National Academy for State Health Policy have published a new fact sheet including recommendations for content to include in a plan and examples of templates and tools. This resource is intended for use by clinicians, families, providers and state agencies.
View the fact sheet

Call for Proposals: CATCH Planning, Implementation and Resident Grants

The Community Access to Child Health (CATCH) Program supports pediatric clinicians to collaborate with communities to advance child health. The CATCH Program is currently accepting applications. Clinicians working on initiatives related to pediatric medical home are encouraged to apply.  
View more information

Cultural and Linguistic Competence Health Practitioner Assessment

The National Center for Cultural Competence has developed a self-guided tool to improve delivery of culturally competent services for diverse populations. Clinicians who complete the self-assessment will receive a report with professional development and educational resources related to cultural and linguistic competence.   
View the tool

Clinical Report: Recognition and Management of Medical Complexity

The American Academy of Pediatrics Council on Children with Disabilities has released a Clinical Report that describes children with medical complexity and provides strategies to optimize medical and health outcomes for this sub-population of children with special health care needs.      
View the report

Thinking Outside the Box: How to Advance Health Equity and Care Quality in the Pediatric Medical Home

This three part recorded webinar series from the National Center for Medical Home Implementation provides pediatric clinicians, Title V programs, families and other stakeholders with tools, resources, and strategies to enhance the patient and family experience in the pediatric medical home. This includes but is not limited to the experience of diverse, vulnerable and medically underserved populations.
View webinar recordings and materials

Coordinating Care for Kids – School Nurses Linking with the Medical Home

This recorded webinar provides practical examples and resources on how school nurses, community-based clinicians, and other providers can implement care coordination successfully. School nurses, a family physician and a pediatrician share experiences and approaches to care coordination with a focus on collaboration. 
View the webinar recording and materials

Medical Home Toolkit

The Texas Parent to Parent Medical Home Toolkit includes resources detailing what a medical home is, how to become a parent partner in the doctor’s office, a medical home checklist, questions to ask when choosing a doctor, and much more. All components of the Medical Home Toolkit are free and available for download on the Texas Parent to Parent webpage.
Download the toolkit

Call for Applications: Innovative and Promising Practices in Pediatric Medical Home Implementation

Showcase your work through the National Center for Medical Home (NCMHI) by completing an application for innovative and promising practices in pediatric medical home implementation. All pediatric medical home stakeholders are eligible to apply. This includes but is not limited to clinicians, practices, family organizations, community-based organizations and state agencies.  Applications can be submitted via online form or applications can contact medical_home@aap.org for a printable application.
View the online application

National Center for Care Coordination Technical Assistance

The mission of the National Center for Care Coordination Technical Assistance (NCCCTA) is to support the promotion, implementation and evaluation of care coordination activities and measures in child health across the United States. Tools, resources, and technical assistance are available on the care coordination webpage of National Center for Medical Home Implementation website within the technical assistance and support section.
Learn more about NCCCTA

The Care Coordination Conundrum

The Catalyst Center, with support from the Lucile Packard Foundation for Children’s Health, has published a report on the provision and financing of care coordination. The Care Coordination Conundrum and Children and Youth with Special Health Care Needs is available for download on the Lucile Packard Foundation for Children’s Health website.
Read the report

Medical Home Education Modules for Pediatric Residency Programs

A series of five case-based, educational modules on key medical home principles for pediatric residency programs are now available from the American Academy of Pediatrics. Modules are intended to be incorporated into existing curriculum by residency program directors and faculty. The modules educate residents about characteristics and benefits of the patient- and family-centered medical home, care coordination, care planning, transition to adult care and team-based care.
Read the report


Transition Information

North Texas 2017 Transitional Care Conference

The Pediatric to Adult Care Transitions: Innovative Solutions conference will be hosted Thursday, February 16th at the University of North Texas will look at the need for safe models of transition in the North Texas area, share experiences of successful care models from other communities and introduce resources and call upon participants to explore what role they can play in improving care transitions. Participants will have the opportunity to network, ask questions and share ideas.   
Learn more and register

Transition Survey for Texas Families

BridgingApps/Easter Seals of Greater Houston is creating a tool to help children move to adult life. They need help from Texas families, professionals and youth over age 18. If you need help completing the transition survey please contact bfurler@eastersealshouston.org.  
Take the parent/professional survey

Take the youth survey

2017 Texas Transition Conference

The Texas Transition Conference will be held February 22-24, 2017 in Houston, TX. The event focuses on providing evidence-based practices that result in a smooth transition from school to adult life for youth with disabilities. Attendees include youth with disabilities and their families, educators, transition specialists, vocational coordinators, service agency representatives and other providers.
Learn more and register

Texas SILC Consumer Advocates in Transportation

The Texas State Independent Living Council (SILC) is searching for up to 30 Texans with disabilities to join a team of Consumer Advocates in Transportation (CATs) to serve as a voice for accessible transportation.  The Texas SILC will be hosting five annual transportation conferences focused on removing barriers to accessibility.  CAT members will be asked to attend the five conferences located in Austin, Waco, McAllen, Austin and Galveston and represent their community.  Texas SILC will pay for transportation, lodging, food, and registration costs to attend the conference.  Those interested should contact: Brian White, Project Director (512) 371-7353, extension 1004. 

ACCEPT (Allies Cultivating Change by Empowering Positive Transformation)

ACCEPT is a group of youth and young adults ages 13-25 from across Texas who work together for system transformation by supporting partnerships between youth, young adults, and organizations. Members use their lived experience and that of their peers to help inform and drive system improvements. ACCEPT is currently recruiting a diverse group of youth who are committed to helping in these transformation efforts. This is also a great leadership opportunity for youth to represent communities and organizations. All youth and young adults are invited to apply. Please feel free to share this information with any coworkers, agencies, or youth who might be interested. Applications should be submitted to David McClung at David.Mcclung@austin.utexas.edu.

Online Continuing Medical Education (CME) Course on Six Core Elements of Health Care Transition

The Health Care Transition for Adolescents and Young Adults CME course is sponsored by the Health Services for Children with Special Needs, the National Alliance to Advance Adolescent Health/Got Transition, and the District of Columbia Department of Health. This is an hour long course that presents the experiences of pediatric, family medicine, and internal medicine leaders from DC who piloted the Six Core Elements as part of a transition learning collaborative.
Register for the course

Got Transition Frequently Asked Questions Now Available in Spanish 

Got Transition has updated their website to include the Spanish translation of Frequently Asked Questions for youth and families to learn about the transition to adulthood and the Six Core Elements of Health Care Transition. The English version of this resource can be viewed by clicking on the “Youth & Families” section of www.gottransition.org.

View the resource in Spanish

Toolkit for Primary Care Providers: Health Care for Adults with IDD

Tools developed by the Developmental Disabilities Primary Care Initiative (DDPCI) in Ontario, Canada have been incorporated into a new online toolkit for primary care providers by the Vanderbilt Kentucky Center for Research on Human Development and partner organizations.  The toolkit includes topics of general primary care issues, physical health issues, health watch tables and behavioral and mental health issues.
Access the toolkit

Becoming ABLE Ready Archived Webinar

The Achieving a Better Life Experience (ABLE) Act National Resource Center has archived a webinar that helps youth and families to understand which ABLE program might be best for them, and how to prepare to open an ABLE account. The webinar features perspectives of potential ABLE beneficiaries and family members.
View the archived webinar and materials

Neurologists Endorse Role in Supporting Transition to Adult Health Care

The Child Neurology Foundation has issued a consensus statement indicating that neurologists should take a leadership role in planning youth and young adult patients’ transitions to adult care, and in helping establish care coordination among health care, educational, vocational and community service providers. The statement outlines eight principles that neurologists should consider.   
Read the statement



The resources provided are for informational purposes. The Children with Special Health Care Needs Services Program is not responsible for their content.

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Last updated January 9, 2017