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Association of Maternal
and Child Health Programs (AMCHP) Annual Conference
The 2017 Association of
Maternal and Child Health Programs (AMCHP) annual conference will focus on
inclusion, diversity, and non-traditional partnerships. Maternal and child
health professionals will have the opportunity to attend sessions that will
encourage cross-agency collaboration to advance pediatric medical home
implementation at the state and local level.
more about the conference
Webinar: Partnering with
The American Academy of
Pediatrics will host Partnering with
Diverse Dads: Challenges & Successes on Monday, January 9th
from 12:00 – 1:30pm Central. Experts will discuss strategies and tips for
engaging diverse dads in all types of settings, including pediatric practices.
for the webinar
Emergency Readiness Toolkit
The Eunice Kennedy Shriver Center worked with an
advisory committee of parents of children with special needs to create a
curriculum that increases preparedness knowledge and allows for successful
emergency planning. The curriculum includes a toolkit, tip sheets, and a
template for a personal emergency plan. There are also resources on sharing
information about a child’s unique needs with first responders.
Including People with Disabilities: Public Health
The Association of University Centers on
Disability (AUCD) has developed a new resource that outlines recent advances in
knowledge and practice skills needed by public health professionals for
including people with disabilities in the core public health functions –
Assessment, Policy Development and Assurance.
View the resource
Innovations in Supporting Families Webinar
The National Community of Practice for Supporting Families of Individuals with Intellectual & Developmental Disabilities recently presented a webinar on Life Course in Action: Implementation at All Levels in Missouri. The webinar has been archived as a series of videos demonstrating implementation of life course tools at the individual and family, professional, organizational, community, and systems levels.
View archived videos
Chronic Illness Self-Management in Children and Adolescents
The National Institutes of Health have announced a
funding opportunity to encourage research to improve self-management and
quality of life in children and adolescents with chronic conditions. The FOA
encourages research that takes into consideration various factors that
influence self-management such as individual differences, biological and psychological
factors, family and sociocultural context, family-community dynamics,
healthcare system factors, technological advances, and the role of the
environment. Applications are due January 7, 2017.
information (R01) and (R21)
Pregnancy in Women with Disabilities
The National Institutes of Health have announced a
funding opportunity to encourage research project grants investigating the
incidence, course and outcomes of pregnancy among women with disabilities. Applicants
are encouraged to include women with disabilities and members of the community
in the design and conduct of their research.
Trauma Conference of Central Texas
This two day conference in Austin, TX May 11-12,
2017 will bring together mental health clinicians, physicians, school
personnel, medical/nursing professionals, law enforcement, juvenile justice
professionals, and occupational/physical therapists. The conference will
provide expert guidance, education and continuing education units on the
effects of trauma, as well as evidence-based practices in recognizing and
Learn more and register
Success for Today and
Tomorrow Conference: Accessing Disability Resources
The Success for Today & Tomorrow Conference
will be held Saturday, February 25th, 2017 in College Station, TX.
The event will feature local and statewide vendors, a parent/student panel and
a motivational keynote speaker. Child care will be available for children ages
2-8 and there will be a free “Fungineering” session for children ages 9 and up.
the event invitation
The Lucile Packard Foundation for Children’s
Health recently family photo essays from a photography project that documents
the lives of families who have children with disabilities or chronic medical
conditions. Families are also invited to share their own stories on the project
2017 Inclusion Works!
The Arc of Texas will host the 2017 Inclusion
Works! Conference February 12-14th 2017 in Houston, Texas. The event
provides learning opportunities for parents, educators and school
administrators to improve skills in collaborating to educate students who
qualify for Special Education services.
Learn more and register
Navigate Life Texas
The Navigate Life Texas Regional Pages include
blog articles with facts and tips as well as local events, services and
organizations and support groups.
Medical Home Information
Shared Plan of Care: A
Tool to Support CSHCN & Families
The National Center for
Medical Home Implementation and the National Academy for State Health Policy
have published a new fact sheet including recommendations for content to
include in a plan and examples of templates and tools. This resource is
intended for use by clinicians, families, providers and state agencies.
the fact sheet
Call for Proposals: CATCH
Planning, Implementation and Resident Grants
The Community Access to
Child Health (CATCH) Program supports pediatric clinicians to collaborate with
communities to advance child health. The CATCH Program is currently accepting
applications. Clinicians working on initiatives related to pediatric medical home
are encouraged to apply.
View more information
Cultural and Linguistic
Competence Health Practitioner Assessment
The National Center for
Cultural Competence has developed a self-guided tool to improve delivery of
culturally competent services for diverse populations. Clinicians who complete
the self-assessment will receive a report with professional development and educational
resources related to cultural and linguistic competence.
View the tool
Recognition and Management of Medical Complexity
The American Academy of
Pediatrics Council on Children with Disabilities has released a Clinical Report
that describes children with medical complexity and provides strategies to
optimize medical and health outcomes for this sub-population of children with special
health care needs.
Thinking Outside the Box: How to Advance Health
Equity and Care Quality in the Pediatric Medical Home
This three part recorded webinar series from the
National Center for Medical Home Implementation provides pediatric clinicians,
Title V programs, families and other stakeholders with tools, resources, and
strategies to enhance the patient and family experience in the pediatric
medical home. This includes but is not limited to the experience of diverse,
vulnerable and medically underserved populations.
recordings and materials
Coordinating Care for Kids – School Nurses
Linking with the Medical Home
This recorded webinar provides practical examples
and resources on how school nurses, community-based clinicians, and other
providers can implement care coordination successfully. School nurses, a family
physician and a pediatrician share experiences and approaches to care
coordination with a focus on collaboration.
webinar recording and materials
Medical Home Toolkit
The Texas Parent to Parent Medical Home Toolkit includes resources detailing what a medical home is, how to become a parent partner in the doctor’s office, a medical home checklist, questions to ask when choosing a doctor, and much more. All components of the Medical Home Toolkit are free and available for download on the Texas Parent to Parent webpage.
Download the toolkit
Call for Applications: Innovative and Promising
Practices in Pediatric Medical Home Implementation
Showcase your work through the National Center
for Medical Home (NCMHI) by completing an application for innovative and
promising practices in pediatric medical home implementation. All pediatric
medical home stakeholders are eligible to apply. This includes but is not
limited to clinicians, practices, family organizations, community-based
organizations and state agencies. Applications can be submitted via
online form or applications can contact firstname.lastname@example.org for a printable
National Center for Care Coordination Technical Assistance
The mission of the National Center for Care Coordination Technical Assistance (NCCCTA) is to support the promotion, implementation and evaluation of care coordination activities and measures in child health across the United States. Tools, resources, and technical assistance are available on the care coordination webpage of National Center for Medical Home Implementation website within the technical assistance and support section.
The Care Coordination Conundrum
Learn more about NCCCTA
The Catalyst Center, with support from the Lucile Packard Foundation for Children’s Health, has published a report on the provision and financing of care coordination. The Care Coordination Conundrum and Children and Youth with Special Health Care Needs is available for download on the Lucile Packard Foundation for Children’s Health website.
Read the report
Medical Home Education Modules for Pediatric
A series of five case-based, educational modules on
key medical home principles for pediatric residency programs are now available
from the American Academy of Pediatrics. Modules are intended to be
incorporated into existing curriculum by residency program directors and
faculty. The modules educate residents about characteristics and benefits of
the patient- and family-centered medical home, care coordination, care
planning, transition to adult care and team-based care.
North Texas 2017
Transitional Care Conference
The Pediatric to Adult
Care Transitions: Innovative Solutions conference will be hosted Thursday,
February 16th at the University of North Texas will look at the need
for safe models of transition in the North Texas area, share experiences of
successful care models from other communities and introduce resources and call
upon participants to explore what role they can play in improving care transitions.
Participants will have the opportunity to network, ask questions and share
Learn more and register
Transition Survey for
of Greater Houston is creating a tool to help children move to adult life. They
need help from Texas families, professionals and youth over age 18. If you need
help completing the transition survey please contact
Take the youth survey
2017 Texas Transition
The Texas Transition
Conference will be held February 22-24, 2017 in Houston, TX. The event focuses
on providing evidence-based practices that result in a smooth transition from
school to adult life for youth with disabilities. Attendees include youth with
disabilities and their families, educators, transition specialists, vocational
coordinators, service agency representatives and other providers.
more and register
SILC Consumer Advocates in Transportation
The Texas State Independent Living Council (SILC) is
searching for up to 30 Texans with disabilities to join a team of Consumer
Advocates in Transportation (CATs) to serve as a voice for accessible
transportation. The Texas SILC will be
hosting five annual transportation conferences focused on removing barriers to
accessibility. CAT members will be asked
to attend the five conferences located in Austin, Waco, McAllen, Austin and
Galveston and represent their community.
Texas SILC will pay for transportation, lodging, food, and registration
costs to attend the conference. Those
interested should contact: Brian White, Project Director (512) 371-7353,
ACCEPT (Allies Cultivating Change by Empowering
ACCEPT is a group of youth and
young adults ages 13-25 from across Texas who work together for system
transformation by supporting partnerships between youth, young adults, and
organizations. Members use their lived experience and that of their peers to help
inform and drive system improvements. ACCEPT is currently recruiting a diverse
group of youth who are committed to helping in these transformation efforts.
This is also a great leadership opportunity for youth to represent communities
and organizations. All youth and young adults are invited to apply. Please feel
free to share this information with any coworkers, agencies, or youth who might
be interested. Applications should be submitted to David McClung at David.Mcclung@austin.utexas.edu.
Continuing Medical Education (CME) Course on Six Core Elements of Health
The Health Care Transition for Adolescents and Young Adults CME course is sponsored by the Health Services for Children with Special Needs, the National Alliance to Advance Adolescent Health/Got Transition, and the District of Columbia Department of Health. This is an hour long course that presents the experiences of pediatric, family medicine, and internal medicine leaders from DC who piloted the Six Core Elements as part of a transition learning collaborative.
Register for the course
Got Transition Frequently Asked Questions Now Available
Got Transition has updated their website to include the Spanish translation of Frequently Asked Questions for youth and families to learn about the transition to adulthood and the Six Core Elements of Health Care Transition. The English version of this resource can be viewed by clicking on the “Youth & Families” section of www.gottransition.org.
View the resource in Spanish
Toolkit for Primary Care Providers: Health Care
for Adults with IDD
Tools developed by the Developmental Disabilities
Primary Care Initiative (DDPCI) in Ontario, Canada have been incorporated into
a new online toolkit for primary care providers by the Vanderbilt Kentucky
Center for Research on Human Development and partner organizations. The toolkit includes topics of general
primary care issues, physical health issues, health watch tables and behavioral
and mental health issues.
Access the toolkit
Becoming ABLE Ready Archived Webinar
The Achieving a Better Life Experience (ABLE) Act
National Resource Center has archived a webinar that helps youth and families
to understand which ABLE program might be best for them, and how to prepare to
open an ABLE account. The webinar features perspectives of potential ABLE
beneficiaries and family members.
archived webinar and materials
Neurologists Endorse Role
in Supporting Transition to Adult Health Care
The Child Neurology
Foundation has issued a consensus statement indicating that neurologists should
take a leadership role in planning youth and young adult patients’ transitions
to adult care, and in helping establish care coordination among health care, educational,
vocational and community service providers. The statement outlines eight
principles that neurologists should consider.
The resources provided are for informational purposes. The Children with Special Health Care Needs Services Program is not responsible for their content.
External email links are provided to you as a courtesy. Please be advised that you are not emailing the Texas Department of Health State Health Services (DSHS) and DSHS policies do not apply should you choose to correspond.
Send comments or report broken links by e-mail to CSHCN Services Program.