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Texas Cancer Registry - FAQ's


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FAQs Index

General Cancer-Related Questions

I know several people in my community with cancer. Is this a cluster?

Has the Cancer Surveillance & Epidemiology Branch investigated cancer in my community?

What kinds of cancer data are available and how do I request it?

Question. How do I obtain a copy of a TCR publication?

Answer. There are two ways: You can go to the publications section of our web page, and view and/or print the information online, or you may call us (1-800-252-8059) and make your request.

Question. Where can I obtain an assessment of a cancer treatment facility?

Answer. The Texas Cancer Registry does not assess treatment facilities and cannot provide such information. We suggest you contact the Health Facility Licensing and Compliance Division at DSHS.

Question. How can I obtain more general or statistical information about cancer?

Answer. We provide additional links to web sites offering a variety of useful cancer information. This information ranges from assistance in coping with a cancer diagnosis, to providing national or state cancer statistics.

Question. I have been diagnosed with cancer. How do I find out if I am in the Texas Cancer Registry database?

Answer. By law, all newly-diagnosed cases of cancer (with the exception of basal cell and squamous cell skin cancers) are reported to the Texas Cancer Registry. In order to find out if you personally have been reported, you may send us a letter requesting this information and provide your full name, social security number and date of birth.

Question. I have just been diagnosed with cancer. I want to know why I developed this type of cancer and what I could have done to prevent it.

Answer. It is natural to wonder about prevention and ask the question "why me?" But, scientists and physicians can rarely assign a particular cause to a particular cancer case. Cancer is a common disease, everyone is susceptible, and it is seldom possible to explain exactly why someone develops cancer. There are many factors that influence the likelihood of developing different types of cancer. Some factors, such as diet, physical activity or tobacco use, we can do something about. Other factors, such as genetics or metabolic processes in the body, we have no control over. The TCR has provided links for additional information and resources for persons diagnosed with cancer.

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Cancer Reporting-Related Questions

Question. Where do I find information on Texas cancer reporting requirements?

Answer. This information can be found on our Reporting web page.

Question. How can I get help with my cancer reporting?

Answer. We provide information for our reporters including our Cancer Reporting Handbook, as well as a free online abstracting software, Web Plus, which facilitates reporting. For other kinds of assistance, including training, etc., contact the Texas Cancer Registry at (1-800-252-8059) to make your request.

MP/H Rules for Bladder

Question: Do we code a 2008 urothelial cancer with small cell differentiation to small cell cancer?

Answer. According to the MP/H 2007 Rules, cell differentiation is not coded in bladder tumors. Use Rule H3 and code 8120 (Transitional cell/urothelial cell carcinoma). Rule H3 indicates to code 8120 (transitional cell urothelial carcinoma) when there is: Pure transitional cell carcinoma, flat (non-papillary) transitional cell carcinoma, transitional cell carcinoma with squamous differentiation, transitional cell carcinoma with glandular differentiation, transitional cell carcinoma with trophoblastic differentiation, nested transitional cell carcinoma, or microcystic transitional cell carcinoma.

Resources: Commission on Cancer Inquiry & Response System, Question ID No. 23984, http://web.facs.org/coc/FMPro?-db=ajcctransaction.fp5&-format=search_resultsfeedbackreply.htm&transaction-id=23984&-script=updatefeedback&-find, 2007 Multiple Primary & Histology Coding Rules (Revised May 2007), page 315.

Question: On 10/18/2006 a patient was diagnosed with Transitional Cell Carcinoma (8120/3) of the bladder. On 9/10/2008 they were diagnosed with non-invasive urothelial cancer of the urethra. Is this a single primary?

Answer. Per Rule M8, this would be a single primary. The urethra ca is an example of the field effect --- cancer cells appearing in other epithelial tissue within the urinary system. Rule M8 indicates urothelial tumors located in two or more of the following sites are considered single primaries: the renal pelvis (C659), ureter (C669), bladder (C670-C679) and urethra/prostate urethra (C680).

Resources.SEER Program Coding and Staging Manual 2007, page C-898. Commission on Cancer Inquiry & Response System, Question ID No. 27928, http://web.facs.org/coc/FMPro?-db=ajcctransaction.fp5&-format=search_resultsfeedbackreply.htm&transaction-id=27928&a mp;-script=updatefeedback&-find

Question: A patient with Transitional Cell Carcinoma (8120/3) was diagnosed in 2003. In 2008 they were diagnosed with urothelial cancer (8120/3). Does this go under rule M6 or M7?

Answer. If both tumors occurred in the bladder, you would stop at Rule M6. This rule was written specifically for bladder so that we do not overcount the number of bladder tumors. However, if the 2008 urothelial cancer occurred in two separate organs, you would continue on to Rule M7 and have two primaries.

Resources. 2007 Multiple Primary & Histology Coding Rules (Revised May 2007), page 315. Commission on Cancer Inquiry & Response System, Question ID No. 28204, http://web.facs.org/coc/FMPro?db=ajcctransaction.fp5&-format=search_resultsfeedbackreply.htm&transaction-id=28204&-script=updatefeedback&-find


Cancer Data-Related Questions

Question. Where can I find cancer incidence/mortality rates for my area of Texas?

Answer. These data are available online for counties or for Public Health Regions. To obtain rates for a combination of several counties at once, or for average annual rates for specific years, send your request to the Texas Cancer Registry, e-mail Statistical Data Requests, or call us at (1-800-252-8059) to make your request. We also publish reports on cancer incidence and mortality in Texas, including county-specific and PHR-specific data, as described on our Publications webpage.

Q. How can I obtain cancer data for some other site or format than that provided on the web page?

Answer. This information is available by making a Data Request to the Texas Cancer Registry. When you call or e-mail, please be sure to try and clearly describe the types of data you are seeking and the format in which you need the data. Most data requests for simple rates, etc., are provided within one working day.

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Q. How do I obtain cancer data on age at diagnosis?

Answer. Our cancer incidence and mortality reports, Cancer in Texas and Texas Cancer Mortality Statistics contain specific tables or figures on average age at diagnosis or death. You may contact the Texas Cancer Registry by e-mailing Statistical Data Requests , or calling (1-800-252-8059). This type of request can usually be answered within 24 hours.

Question. Where can I find a code list for the classifications used for cancer, the ICDO-3, ICD-9 or ICD-10?

Answer. For data obtained on this website, we provide the site recode list for incidence and mortality rates on our Statistical Data webpage.

Question. How can I obtain geocoded data, or cancer data by census tract?

Answer. All of our cancer data are not yet geocoded, therefore, census tract data are not yet available from the Texas Cancer Registry. We hope/expect to have such data in the future. In the meantime it may be possible to obtain the detailed address information needed to do your own geocoding, but this requires a rigorous application process for confidential data, and such applications are only approved after careful evaluation and review. To obtain more information about this process, or obtain the application for personal/confidential cancer incidence data, go to our Information for Researchers section.

Question. How can I get more information about the big changes in cancer rates beginning in 1999?

Answer. These changes were due to a change in the standard population used for age-adjustment.This is described on our Standard Population section.

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Last updated January 11, 2013