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    Newborn Screening Unit
    PO Box 149347, MC-1918
    Austin, Texas 78714-9347

    Phone: 512-776-3957
    Fax: 512-776-7450
    Toll-free: 800-252-8023, ext. 3957

    newborn@dshs.texas.gov


Newborn Screening Advisory Committee Members

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Membership Appointments and Terms 

An application process is required to become a member of the Newborn Screening Advisory Committee. Candidates must complete an application and include at least two letters of recommendation. In spring 2010, the commissioner of the Texas Department of State Health Services appointed the initial nine members of the committee. Initial members served staggered terms of two to six years. 

In spring 2013, the passage of House Bill 740 during the 83rd Legislative Session, amended Texas Health & Safety Code §33.017 increasing the minimum number of committee members in certain categories, requiring at least four physicians licensed to practice medicine in Texas, at least two hospital representatives, at least two persons who have family members affected by a condition, and at least two healthcare providers. 

In September 2018, DSHS added two new member positions to the Newborn Screening Advisory Committee to continue the work of the Sickle Cell Advisory Committee, which was abolished on September 1, 2018. As vacancies occur or terms expire, applications are solicited and appointments are made to fill vacant or expired terms. 

Current Committee Members

List of Members (Click name to view biography)
 Name Term Expires
 Alice K. Gong, MD, Chair  August 2020
 Beryl Pamela Andrews  August 2021
 Charleta Guillory, MD, MPH  August 2022
 Elizabeth Stehel, MD  August 2022
 Joseph Schneider, MD  August 2020
 Khrystal Davis August 2022
 Linda Zediana, RN August 2020
 Melissa Frei-Jones, MD  August 2021
 Michael E. Speer, MD, Vice-Chair  August 2021
 Nancy Louise Beck, MD  August 2021
 Scott D. McLean, MD  August 2020
 Tiffany McKee-Garrett, MD  August 2020
 Titilope Fasipe, MD, PhD  August 2021


Alice K. Gong, MD – Bexar County (Chair)
Membership Position – Physician/Neonatal
Member Term expires August 31, 2020 
Chair Term expires August 31, 2020

Alice Gong is a board-certified physician in pediatrics and neonatal perinatal medicine. She is a professor of pediatrics at The University of Texas Health Science Center at San Antonio since 1985 and a staff neonatologist at University Hospital, San Antonio. She served as co-chair of the Texas Pulse Oximetry Project (TxPOP) coalition which developed educational materials about critical congenital heart disease screening for newborns in Texas. Dr. Gong has served on numerous committees and boards related to pediatric health including March of Dimes Texas State Advocacy and Government Affairs, Texas Pediatric Society Board, Texas Medical Association Council on Science and Public Health, American Academy of Pediatrics, American Medical Association, International Lactation Consultant Association, and Texas Collaborative for Healthy Mothers and Babies Executive Board. Dr. Gong is an original member of the Texas Newborn Screening Advisory Committee. She has been an active member since the committee was established in 2010. She was elected vice-chair of the committee in 2016 and chair of the committee in 2019. 
 

Beryl Pamela “Pam” Andrews – Travis County
Membership Position – Individual/Family Member Affected by a Condition
Term expires August 31, 2021

Pam Andrews is a parent of two children diagnosed with a rare, neurodegenerative genetic condition. She co-founded the non-profit, The Firefly Fund, with the mission to fund and support research and education for rare neurodegenerative genetic diseases. She also oversees, manages, and coordinates The Firefly Fund’s Niemann-Pick Type C1 Newborn Screening Working Group. Ms. Andrews not only understands the impact of newborn screening as a parent, but also as a former public health official. Her federal and state-level legislative and public health policy experience includes serving as Health Policy Specialist with the Texas Department of Insurance and Committee Clerk with the Texas Senate Committee on Health and Human Services. As Committee Director of the Texas House Committee on Public Health, she worked on a study related to adding a condition to the Texas Newborn Screening Panel. Ms. Andrews works in consulting/marketing and lives in the Austin, Texas area. She joined the committee in September 2018, expanding the geographic and demographic representation of the committee to include the Central Texas region.

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Charleta Guillory, MD, MPH – Harris County
Membership Position – Physician/Neonatal
Member Term expires August 31, 2022

Charleta Guillory is an associate professor of pediatrics in the Neonatology Section at Baylor College of Medicine. Dr. Guillory also serves as the associate director of the Level II Neonatal Intensive Care Unit (NICU) and director of the Neonatal-Perinatal Public Health Program at Texas Children’s Hospital. She is a board-certified physician in pediatrics and neonatal-perinatal medicine. She received a Bachelor of Science in Biology from the University of Southwestern Louisiana and a medical degree from Louisiana State University Medical School. Dr. Guillory also has a Master of Public Health degree from the University of Texas, School of Public Health. She has extensive experience in the care of newborns, including those with genetic and metabolic disorders, and has served in leadership roles with various organizations, including the March of Dimes and the Texas Pediatric Society. Dr. Guillory has been a member of the Newborn Screening Advisory Committee since it was established in 2010. She was elected as committee chair in 2016.


Elizabeth “Kaili” Stehel, MD – Dallas County 
Membership Position – Physician 
Term expires August 31, 2022

Elizabeth “Kaili” Stehel is a board-certified physician in pediatrics and is a board-certified lactation consultant. She is employed with The University of Texas Southwestern Medical Center as an associate professor of pediatrics as well as Pediatrix Medical Group. Dr. Stehel also is a professor of pediatrics at Texas A&M University. She works in the newborn nurseries at Parkland Hospital and Baylor University Medical Center Texas. Her experience working in the Dallas/Fort Worth region expands the geographical perspective of the committee. She participated in the HB411 Oversight Committee as an external stakeholder with knowledge and expertise in the statewide implementation of the parental consent in newborn screening. Dr. Stehel is a member of the Texas Medical Association Maternal and Perinatal Health Committee and a member of the Texas Pediatric Society Fetus. 

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Joseph Schneider, MD – Dallas County
Membership Position – Physician
Term expires August 31, 2020

Joseph Schneider is a board-certified physician in pediatrics and is a pediatrician in the newborn nursery at UT Southwestern/Parkland Hospital in Dallas since 2006. Dr. Schneider also holds a Master of Business Administration with substantial experience in clinical informatics and a focus on newborn screening. He has served on numerous committees and boards including the American Academy of Pediatrics, chair and vice-chair for the Council on Clinical Information Technology Executive Committee; Texas Medical Association, chair for the Council on Practice Management, and chair for the Committee on Health Information Technology; Texas Pediatric Society, Board of Directors, Committees on Practice, Legislation, Children with Disabilities and Hospital Practice; and Dallas County Medical Society, chair on the Council of Socioeconomics. Dr. Schneider serves as an appointee of the Follow Up and Treatment Workgroup of the Health Resources and Services Administration Advisory Committee on Heritable Disorders in Newborns and Children. He was an appointee to the Texas State Medicaid Medical Advisory Committee with the Texas Pediatric Society.


Khrystal Davis –  Travis County
Membership Position – Individual/Family Member Affected by a Condition
Term expires August 31, 2022

Khrystal K. Davis is a parent and caregiver to a child with Spinal Muscular Atrophy (SMA), a rare disorder on the national Recommended Uniform Screening Panel (RUSP) that is not currently screened in Texas. Ms. Davis is a rare disease patient advocate and consultant with the goal of improving the diagnostic process for rare disease patients. Ms. Davis is also a member of several rare disease patient advocacy groups, which include the National Organization for Rare Disorders, Rare Diseases Action Network, and Families for the Access of SMA Treatments (FAST).

Ms. Davis’s advocacy includes testifying in support of legislation for securing long-term funding for the Texas Newborn Screening Program, and she has advocated at the federal level for the Newborn Screening Saves Lives Reauthorization Act of 2019. Ms. Davis has participated in several Newborn Screening Advisory Committee meetings by making public comment advocating for SMA screening in Texas. Ms. Davis’s understanding as a parent and patient advocate brings an important parental perspective to the Committee.

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Linda Zediana, RN – Tarrant County
Membership Position – Hospital Representative
Term expires August 31, 2020

Linda Zediana has over 12 years of experience as a registered nurse and is on the staff of the Mother-Baby Unit at Baylor Scott and White Hospital, Fort Worth. She is the charge nurse and unit leader for newborn screening in the nursery. She trains and supports experienced and new graduate nurses in the collection of blood specimens as part of an ASPIRE project, which is a successful quality initiative for proper blood spot sampling in newborn screening. Ms. Zediana also trains and educates staff nurses and technicians who provide direct care to moms and newborns. She advocates in raising awareness on proper newborn screening and follow-up in pregnancy centers and pediatric offices. She collaborates with the hospital management staff, hospital laboratory, education department, and Family Center Unit for proper newborn screening processes. In addition to her experience within Texas, she was on staff in the level II nursery in Massachusetts. Ms. Zediana has served in an advocacy role with Pastor Craig Johnson’s Champions Club, which focuses on incorporating sensory learning in a church setting to children with special needs. 


Melissa Frei-Jones, MD – Bexar County
Membership Position – Healthcare provider for Sickle Cell Trait/Sickle Cell Disease
Term Expires August 31, 2021

Melissa Frei-Jones has her board certification in pediatrics, as well as pediatric hematology and oncology. She is an Associate Professor of Pediatrics with the University of Texas School of Medicine. Dr. Frei-Jones is also the Medical Director of the South Texas Sickle Cell and Thalassemia Center where she cares for children and young adults with sickle cell disease. She has over 10 years of experience including serving seven years as Medical Director of the Pediatric program in San Antonio. Her other professional experience related to sickle cell disease includes: medical director of Camp Cell-A-Bration, program director of Pediatric Hematology/Oncology Fellowship program, and participant with the regional Mountain States Sickle Cell Consortium. Dr. Frei-Jones has professional memberships in: American Society of Hematology; American Society of Pediatric Hematology/Oncology (ASPHO), Hemoglobinopathy Special Interest Group; ASPHO representative to the American Board of Pediatrics Foundation for the development of a Sickle Cell Disease Learning Network Initiative; Medical Director and physician representative/ board member of the Sickle Cell Disease Association of Austin – Marc Thomas Chapter. She was an active member of the Sickle Cell Advisory Committee from 2016 to 2018. Dr. Frei-Jones was appointed to the Newborn Screening Advisory Committee in September 2018.

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Michael E. Speer, MD – Harris County (Vice-Chair)
Membership Position – Physician/Neonatal
Term expires August 31, 2021 
Vice-Chair Term expires August 31, 2021 

Michael E. Speer is a board-certified physician in pediatrics and neonatal-perinatal medicine and is employed with Baylor College of Medicine in Houston as a professor of pediatrics and medical ethics. He serves on numerous committees and boards related to pediatric health and newborn screening. He is a board member of the Gulf Coast Regional Blood Center and vice-chair of the executive committee of the Texas Collaborative for Healthy Mothers and Babies. Dr. Speer served for six years on the board of trustees of the Texas Medical Association (TMA), including serving as chair. He served for 40 years on the Texas Pediatric Society’s Fetus and Newborn Committee. Dr. Speer maintains professional memberships with the TMA; the Texas Chapter of the American Academy of Pediatrics; the Texas Perinatal Association; and the Harris County Medical Society. He has extensive experience including 39 years as a practicing neonatologist at a Level IV NICU at Texas Children’s Hospital. He has written and lectured on congenital, metabolic disorders and newborn screening throughout his career. Dr. Speer has served as a very active and vocal member of the Newborn Screening Advisory Committee since 2012, providing invaluable expertise and knowledge. He was elected vice-chair of the committee in 2019.


Nancy Louise Beck, MD – Lubbock County 
Membership Position – Healthcare Provider
Term expires August 31, 2021
 
Nancy Louise Beck is a board-certified physician in pediatrics with a specialty in pediatric endocrinology. Dr. Beck’s extensive educational background includes a bachelor’s degree and Master of Science in nutrition, and she is a registered dietitian. She completed her pediatric residency at Dell Children’s Hospital in Austin and her pediatric endocrine fellowship at Arkansas Children’s Hospital. Dr. Beck is an assistant professor and pediatric endocrinologist at Texas Tech University Health Sciences Center. With her background in endocrinology and nutrition, she brings the knowledge and experience related to the screening and treatment of newborn and childhood metabolic disorders to the committee. Dr. Beck practices in West Texas and her experience working in a border region expands the geographical perspective of the committee. She previously served on the Obesity Committee and is a member of the Pediatric Endocrine Society, American Academy of Pediatrics, and Lubbock Academy of Nutrition and Dietetics. She has been an active member of the Newborn Screening Advisory Committee since 2013. 

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Scott D. McLean, MD – Bexar County 
Membership Position – Healthcare Provider
Term expires August 31, 2020

Scott McLean is a board-certified physician in clinical genetics and works at Children’s Hospital of San Antonio, Baylor College of Medicine. Dr. McLean is directly involved in the follow-up care of infants who receive an abnormal newborn screening test. He teaches residents and faculty about newborn screening, hearing loss, and inborn errors of metabolism. He developed a multidisciplinary newborn screening follow-up clinic to serve patients in San Antonio and the surrounding region. Dr. McLean has been involved with public policy for newborn screening for at least 25 years. He is a board member of the Down Syndrome Association of South Texas and Jewish Family Service of San Antonio. He served for 26 years as a medical officer in the United States Army and developed the Department of Defense policy for newborn screening and clinical genetics. Dr. McLean has been a member of the Texas Newborn Screening Advisory Committee since 2014. He has been an active member and brings extensive experience in policy development and patient care in newborn screening, particularly regarding population-based genetic screening. 


Tiffany McKee-Garrett, MD – Harris County 
Membership Position – Hospital Representative 
Term expires August 31, 2020
 
Tiffany McKee-Garrett is a physician specializing in pediatrics. She has been a newborn hospitalist for almost 20 years, specializing in neonatal and perinatal medicine. She was a lead physician involved in the implementation of newborn screening for critical congenital heart disease (CCHD) at Texas Children’s Hospital in Houston. Dr. McKee-Garrett has a leadership role at Texas Children’s and regularly reviews newborn screening data, allowing her to be familiar with barriers to screening, education of providers, and quality improvement initiatives for newborn screening. She was involved in the newborn screening initiative for universal hearing screening, and as an associate medical director, was directly involved in opening a Mother-Baby Unit (MBU) at Texas Children’s Hospital in Houston in 2012. Dr. McKee-Garrett was a team member on the Texas Pulse Oximetry Project (TxPOP) coalition that allowed her to educate students, interns, residents, and families on the importance of newborn screening. She has served as a member on the Texas Pediatric Society Fetus and Newborn Committee. 

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Titilope Fasipe, MD, PhD – Harris County 
Membership Position – Individual/Family Member Affected by Sickle Cell Trait/Sickle Cell Disease 
Term expires August 31, 2021 

Titilope Fasipe has the unique perspective of relating to and understanding the need for education, community awareness, support, and medical care as she is a physician as well as an individual with sickle cell disease. Dr. Fasipe has a Bachelor of Science in biology with a minor in chemistry from the University of Texas at Arlington. She obtained her doctorate in cell biology and her medical degree from the University of Texas Medical Branch (UTMB), Galveston, Texas.  In July 2016, she joined the faculty at Baylor College of Medicine as Assistant Professor of Pediatrics in Hematology/Oncology and has continued her research on sickle cell disease. She also provides care to sickle cell patients at the Texas Children’s Hematology Center. Dr. Fasipe has multiple professional memberships including: American Society of Hematology; American Society of Pediatric Hematology/Oncology; Fellow, American Academy of Pediatrics. She also is a board member of Supporting our Sicklers (SOS) Parent and Guardian Support Group and a member of Sickle Cell Disease Network-Houston. Dr. Fasipe was a member of the Sickle Cell Advisory Committee from 2016 to 2018 and joined the Newborn Screening Advisory Committee in September 2018. 

 


Last updated October 16, 2019