Resources for Parents

On May 26, 2015, the Newborn Screening Program began reporting results for 24 secondary conditions in addition to the 29 core conditions.

How do I get my baby's test results?

You can get the results from your baby’s doctor. The results are sent to the doctor from the Texas Department of State Health Services (DSHS) laboratory in one to two weeks.

What if the test is out of range or abnormal?

If a result is out of the expected range, newborn screening clinical care coordination staff will follow up with the baby’s healthcare provider to ensure that the appropriate next steps are taken. The baby's healthcare provider staff will contact parents.

An abnormal laboratory result triggers follow-up and case management to ensure that the baby receives confirmatory testing and treatment, if needed. Early treatment can prevent serious complications such as growth problems, developmental delays, deafness or blindness, intellectual disability, seizures or even early death. Learn more about the program and view frequent questions.

Is more testing available?

DSHS screens for many but not all diseases your baby may have. More tests can be done. Ask your baby’s healthcare provider, go to find a condition, or pregnant families for more information.

Financial Assistance

Limited financial assistance is available for infants, children and adults diagnosed with an identified NBS disorder and is prioritized by need as funds are available. Qualifications: 

  • Income at or below 350% of Federal Poverty Income Level  
  • Resident of the state of Texas
  • Not eligibility for other programs providing the same services such as:
    -Medicaid
    -Children with Special Health Care Needs (eligible if on waiting list)
    -Children’s Health Insurance program
    -CHIP Perinatal
    -Title V Genetic Services
    -Private Insurance

    Assistance Provides
    
Dietary Supplements (metabolic or low-protein foods) 
    Medications 
    Vitamins 
    Confirmatory testing, evaluation, and follow-up care 
    Reimbursement to specialists for telephone consultations

    Email NBS Benefits or call 1-800-252-8023 ext. 2983 for more information.

Additional information:

Congenital Adrenal Hyperplasia (CAH)

Things to Know about Cystic Fibrosis (CF) (PDF, English/Spanish)

Cystic Fibrosis Accredited Care Centers in Texas (PDF)

Galactosemia (GAL)

Hemoglobinapathy
    Alpha Thalassimia Trait (PDF)
    "F, A, Other"
    Sickle Cell Disease and Sickle Cell Trait

Hypothyroidism

Phenylketonuria (PKU)

Severe Combined Immunodeficiency (SCID)

Websites

Baby's First Test: The nation's newborn screening clearinghouse - Facts, advice and support for parents and professionals.

Save Babies Through Screening Foundation - A non-profit organization that advocates for comprehensive newborn screening.

Newsletter

DSHS Newborn Screening Newsletter


External links to other sites are intended to be informational and do not have the endorsement of the Texas Department of State Health Services. These sites may not be accessible to people with disabilities.

Last updated February 17, 2017