• 2019 NAACCR Gold Certification

    NPCR Registry Seal 2019

    Surveillance Seal 2020

Research Data Requests

Group of People at University

Providing datasets and data linkages for research related to cancer etiology, prevention, and control is one of the critical functions of the Texas Cancer Registry (TCR). The TCR can provide these services to researchers under strict guidelines.

Protecting patient confidentiality is paramount to the TCR and is required by state law and rules (Health and Safety Code, Section 82.009; Texas Administrative Code, Title 25, Part 1, Chapter 91, Subchapter A). Data requests for personal identifiers (e.g., name, date of birth, address) or information on geographic areas below the county level (e.g., ZIP code, census tract) must be approved by the Department of State Health Services (DSHS) Institutional Review Board (IRB) and the Research Executive Steering Committee (RESC) before the TCR can release the data.

Before submitting a request for customized incidence data or a data linkage, review the following documents:

To request confidential data, including data for a patient contact study, data linkage or analytic dataset, fill out the TCR Confidential Data Request Form (.docx) and email it to CancerData@dshs.texas.gov.

Once the request is reviewed, TCR staff will provide instructions for completing the following forms that are relevant to your request:

For information on specific types of studies, visit:

The use of TCR data for presentation or publication purposes should acknowledge the TCR using the requested citation.

If you have any questions, contact the TCR Epidemiology Group via email at CancerData@dshs.texas.gov or call 512-776-3080.

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Last updated February 18, 2020