Critical Congenital Heart Disease (CCHD)
Critical congenital heart disease (CCHD) represents a group of heart defects that cause serious, life-threatening symptoms and requires intervention within the first days or first year of life. CCHD is one of the leading causes of death in infants less than one-year-old. CDC reports that 7,200 infants are born with this condition each year in the United States.
CCHD is often treatable if detected early. It can include abnormalities in the rhythm of the heart, as well as a wide array of structural heart problems. Baby's First Test provides more information about CCHD.
Beginning in September 2014, reporting confirmed CCHD cases is mandatory in Texas. House Bill 740, 83rd Legislature Regular Session, 2013, added this condition to the required Texas newborn screening panel. The Texas Department of State Health Services (DSHS) has developed Texas Administrative Code rules for CCHD screening located in Chapter 37 §37.75 – 37.79 (PDF).
Birthing facilities, hospitals, and physicians can use the CCHD toolkit to assist with implementing CCHD screening. The toolkit was developed through the Texas Pulse Oximetry Project with support from DSHS. It provides educational and technical information on screening for CCHD, including the screening algorithm card, brochures, and other information for physicians and nurses.
Required Reporting Form
Newborn screening for CCHD requires that confirmed cases be reported to DSHS. Use the CCHD Reporting Form to document confirmed cases. Completed forms can be faxed or mailed as follows:
Fax Number: 512-776-7450
Attention: CCHD Program
Attention: CCHD Program
Texas Department of State Health Services
Newborn Screening Genetics Branch
P.O. Box 149347, MC 1918
Austin, TX 78714-9347
Free Continuing Education Accredited CCHD Course
The Texas Health Steps' online program provides a module on critical congenital heart disease. Healthcare providers learn about performing state-mandated newborn screening for critical congenital heart disease (CCHD), evaluating results, and providing appropriate follow-up. Free continuing education credit is provided after module and test completion.
Frequently Asked Questions
- About Us - Newborn Screening Program
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- Newborn Screening Testing: For Your Baby's Health
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- Newborn Screening Program Frequently Asked Questions
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