CJD Resources Handout (PDF)
 

National Prion Disease Pathology Surveillance Center

Supported by CDC and sponsored by the American Association of Neuropathologists, NPDPSC was established to help monitor the incidence of human prion disease in the United States as well as decipher which cases may be due to an acquired etiology and monitor for novel prion diseases. The center was established in 1997 in the Division of Neuropathology at Case Western Reserve University in Cleveland, Ohio.

• National Prion Disease Pathology Surveillance Center
  2085 Adelbert Rd Rm 419
  Cleveland, Ohio 44106
• Phone: 216-368-0587
• Fax: 216-368-4090
• Email: cjdsurveillance@uhhospitals.org
• Website: cjdsurveillance.com
   

Creutzfeldt-Jakob Disease Foundation

The mission of the Creutzfeldt-Jakob Disease Foundation (CJD Foundation) is to support families affected by Prion Disease, raise awareness, and support medical education and research. The CJD Foundation supports families with a Helpline, referrals, support groups, and teleconference speaker series. They have an annual family conference in Washington, DC and have family workshops around the country. They provide education and information for families, caregivers, medical professionals, and funeral professionals. They have a research grant program, disseminate research findings, and collaborate with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations. They also actively advocate for the development of a response through public policy. 

• CJD Foundation 
  3634 W. Market St., Suite 110
  Akron, OH 44333
• HelpLine: 1-800-659-1991
• Email: help@cjdfoundation.org 
• Website: www.cjdfoundation.org/
   

Website Resources

Centers for Disease Control and Prevention (CDC)

• Prion Diseases
• Classic Creutzfeldt-Jakob Disease (CJD) or Classic Creutzfeldt-Jakob Disease (CJD) (Clinical)
• Infection Control for CJD
• CJD Diagnostic Criteria (in the United States)
• Information for Funeral and Crematory Practitioners
• Variant Creutzfeldt-Jakob Disease (vCJD)

World Health Organization (WHO)

• Infection Control Guidelines 
• Tissue Infectivity Tables (2006) and updated Tissue Infectivity Tables (2010)

Genetic Prion Disease

• National Prion Disease Pathology Surveillance Center

Bovine Spongiform Encephalopathy (BSE or “mad cow disease”)

• CDC: Bovine Spongiform Encephalopathy (BSE)
• U.S. Department of Agriculture/Animal and Plant Health Inspection Service (USDA/APHIS):  Bovine Spongiform Encephalopathy (BSE), BSE Frequently Asked Questions and BSE Surveillance Information Center

Chronic Wasting Disease (CWD)

• CDC: Chronic Wasting Disease (CWD)
• Texas Parks and Wildlife Department (TPWD): Chronic Wasting Disease, Hunting and CWD, and Positive CWD Cases in Texas
• Texas Animal Health Commission (TAHC): Chronic Wasting Disease
• USDA/APHIS: Cervid CWD
• US Geological Services/National Wildlife Health Center (USGS/NWHC): Chronic Wasting Disease and Expanding Distribution of Chronic Wasting Disease

Information for Hunters

• TPWD: Precautions for Hunters, Common Sense Precautions For Handling and Processing Deer, and CWD FAQs for Hunters
• American Veterinary Medical Association (AVMA): Disease Precautions for Hunters - Chronic Wasting Disease
• CDC: CWD Prevention

Scrapie 

• TAHC: Scrapie
• USDA/APHIS: Scrapie Disease Information