Creutzfeldt-Jakob Disease (CJD) Resources
CJD Resources Handout (PDF)
National Prion Disease Pathology Surveillance Center
Supported by CDC and sponsored by the American Association of Neuropathologists, NPDPSC was established to help monitor the occurrence of prion diseases in the United States. The center was established in 1997 at the Division of Neuropathology at Case Western Reserve University.
- cjdsurveillance.com
- National Prion Disease Pathology Surveillance Center
2085 Adelbert Rd Rm 419
Cleveland, Ohio 44106 - Phone: (216) 368-0587
- Fax: (216) 368-4090
- Email: cjdsurveillance@uhhospitals.org
THE CJD FOUNDATION
The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research. The CJD Foundation provides support to families by maintaining a 7-day Helpline, referrals, support groups, and teleconference speaker series. They have an annual family conference in Washington DC and have family workshops around the country. They provide education and information for families, caregivers, medical professionals, and funeral professionals. They have a research grant program, disseminate research findings, and collaborate with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations. They also actively advocate for the development of a response through public policy.
- www.cjdfoundation.org/
- The CJD Foundation
3634 W. Market St.
Suite 110
Akron, OH 44333 - HelpLine: 800-659-1991
- Fax: 212-466-7077
- Email: help@cjdfoundation.org
Centers for Disease Control and Prevention (CDC)
- Prion information: https://www.cdc.gov/prions/index.html
- CJD information: https://www.cdc.gov/prions/cjd/index.html
- Infection Control: https://www.cdc.gov/prions/cjd/infection-control.html
- Diagnostic criteria for CJD in the US: https://www.cdc.gov/prions/cjd/diagnostic-criteria.html
World Health Organization (WHO)
- Infection Control: https://apps.who.int/iris/handle/10665/66707
- Tissue Infectivity Tables: https://apps.who.int/iris/handle/10665/43498 (2006) and
updated 2010 tissue infectivity tables https://www.who.int/publications/m/item/WHO-EMP-QSM-2010.1#:~:text=It%20is%20not%20the%20purpose%20of%20this%20document,materials%2C%20and%20may%20have%20implications%20for%20future%20recommendations
Genetic Prion Disease
- National Prion Disease Pathology Surveillance Center: https://case.edu/medicine/pathology/divisions/national-prion-disease-pathology-surveillance-center/human-prion-disease/genetic-prion-disease
Bovine Spongiform Encephalopathy (BSE or “mad cow disease”)
- CDC: https://www.cdc.gov/prions/bse/index.html
- US Department of Agriculture/Animal and Plant Health Inspection Service(USDA/APHIS): https://www.aphis.usda.gov/aphis/ourfocus/animalhealth/animal-disease-information/cattle-disease-information/cattle-bse/cattle-bse and https://www.usda.gov/topics/animals/bse-surveillance-information-center
Chronic Wasting Disease (CWD)
- CDC: https://www.cdc.gov/prions/cwd/index.html
- Texas Parks and Wildlife Department (TPWD): https://tpwd.texas.gov/huntwild/wild/diseases/cwd/
- Texas Animal Health Commission (TAHC): https://www.tahc.texas.gov/animal_health/elk-deer/#cwd
- USDA/APHIS: https://www.aphis.usda.gov/aphis/ourfocus/animalhealth/animal-disease-information/cervid/cervids-cwd/cervid-cwd or https://www.aphis.usda.gov/aphis/ourfocus/animalhealth/animal-disease-information/cervid/cervids-cwd/cervid-cws-specifics
- US Geological Survey (USGS) National Wildlife Health Center (NWHC): https://www.usgs.gov/centers/nwhc/science/chronic-wasting-disease?qt-science_center_objects=0#qt-science_center_objects or https://www.usgs.gov/centers/nwhc/science/expanding-distribution-chronic-wasting-disease?qt-science_center_objects=0#qt-science_center_objects
Information for hunters:
- TPWD - https://tpwd.texas.gov/publications/pwdpubs/media/pwd_lf_w7000_859.pdf
- American Veterinary Medical Association (AVMA) - https://www.avma.org/resources/public-health/disease-precautions-hunters#cwd
Scrapie
- TAHC - https://www.tahc.texas.gov/animal_health/sheep-goats/#scrapie
- USDA/APHIS -https://www.aphis.usda.gov/aphis/ourfocus/animalhealth/sa_animal_disease_information/sheep-goat/disease-info/index