Creutzfeldt-Jakob Disease (CJD) Resources
CJD Resources Handout (PDF)
National Prion Disease Pathology Surveillance Center
Supported by CDC and sponsored by the American Association of Neuropathologists, NPDPSC was established to help monitor the incidence of human prion disease in the United States as well as decipher which cases may be due to an acquired etiology and monitor for novel prion diseases. The center was established in 1997 in the Division of Neuropathology at Case Western Reserve University in Cleveland, Ohio.
- National Prion Disease Pathology Surveillance Center
2085 Adelbert Rd Rm 419
Cleveland, Ohio 44106 - Phone: 216-368-0587
- Fax: 216-368-4090
- Email: cjdsurveillance@uhhospitals.org
- Website: cjdsurveillance.com
Creutzfeldt-Jakob Disease Foundation
The mission of the Creutzfeldt-Jakob Disease Foundation (CJD Foundation) is to support families affected by Prion Disease, raise awareness, and support medical education and research. The CJD Foundation supports families with a Helpline, referrals, support groups, and teleconference speaker series. They have an annual family conference in Washington, DC and have family workshops around the country. They provide education and information for families, caregivers, medical professionals, and funeral professionals. They have a research grant program, disseminate research findings, and collaborate with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations. They also actively advocate for the development of a response through public policy.
- CJD Foundation
3634 W. Market St., Suite 110
Akron, OH 44333 - HelpLine: 1-800-659-1991
- Email: help@cjdfoundation.org
- Website: www.cjdfoundation.org/
Website Resources
Centers for Disease Control and Prevention (CDC)
- Prion Diseases
- Classic Creutzfeldt-Jakob Disease (CJD) or Classic Creutzfeldt-Jakob Disease (CJD) (Clinical)
- Infection Control for CJD
- CJD Diagnostic Criteria (in the United States)
- Information for Funeral and Crematory Practitioners
- Variant Creutzfeldt-Jakob Disease (vCJD)
World Health Organization (WHO)
- Infection Control Guidelines
- Tissue Infectivity Tables (2006) and updated Tissue Infectivity Tables (2010)
Genetic Prion Disease
Bovine Spongiform Encephalopathy (BSE or “mad cow disease”)
- CDC: Bovine Spongiform Encephalopathy (BSE)
- U.S. Department of Agriculture/Animal and Plant Health Inspection Service (USDA/APHIS): Bovine Spongiform Encephalopathy (BSE), BSE Frequently Asked Questions and BSE Surveillance Information Center
Chronic Wasting Disease (CWD)
- CDC: Chronic Wasting Disease (CWD)
- Texas Parks and Wildlife Department (TPWD): Chronic Wasting Disease, Hunting and CWD, and Positive CWD Cases in Texas
- Texas Animal Health Commission (TAHC): Chronic Wasting Disease
- USDA/APHIS: Cervid CWD
- US Geological Services/National Wildlife Health Center (USGS/NWHC): Chronic Wasting Disease and Expanding Distribution of Chronic Wasting Disease
Information for Hunters
- TPWD: Precautions for Hunters, Common Sense Precautions For Handling and Processing Deer, and CWD FAQs for Hunters
- American Veterinary Medical Association (AVMA): Disease Precautions for Hunters - Chronic Wasting Disease
- CDC: CWD Prevention
Scrapie
- TAHC: Scrapie
- USDA/APHIS: Scrapie Disease Information
Mailing Address
Disease Surveillance and Epidemiology Section
Mail Code: 3082
P.O. Box 149347
Austin , TX 78714-9347
United States
Physical Address
Disease Surveillance and Epidemiology Section
Moreton Building, Suite M-631
1100 West 49th Street
Austin , TX 78756-3199
United States