In 2023, the Texas Department of State Health Services (DSHS) applied for and received funding from the Centers for Disease Control and Prevention (CDC) to establish a state sickle cell data collection system that informs sickle cell practices and policies in Texas. Texas SCDC is one of 16 states funded by the CDC.

Texas SCDC is a one-time state data collection effort and is not a state sickle cell disease registry. Texas SCDC serves as the foundation for measuring sickle cell burden in Texas by assessing long-term trends in sickle cell disease diagnosis, treatment, and healthcare access. In the absence of population-based surveillance, Texas SCDC provides information on all individuals with sickle cell disease in Texas, regardless of age, insurance status, or geography.

The aim of Texas SCDC is to collect, maintain, and disseminate high-quality sickle cell data that will contribute to improving diagnoses, treatments, survival, and quality of life for all individuals with sickle cell disease in Texas.