Sickle Cell Resources

Sickle Cell: About  ·  Types & Complications  ·  Trait  En Español

Sickle Cell Specialists in Texas 

 

Videos

 

Living with and Managing Sickle Cell Disease

The Common Good: Above The Crisis features people sharing how chronic illness can bring mental health challenges. 
 

Sickle Cell Options Video Library shows individuals with sickle cell, caregivers, stakeholders, and healthcare providers.

Transitioning Stories

  • Kevin’s Decision is about a young man's decision on whether or not to take his medicine.
  • Calvanay’s Advice encourages self-advocacy when searching for an adult healthcare provider.

Pediatric Hematology Consultants (PDF)

Genetic Services Provider List

Educational Information 

American Society of Hematology 

Centers for Disease Control and Prevention 

National Heart, Lung, and Blood Institute 

Sickle Options - website developed based on input from persons living with sickle cell disease and their caregivers

Sickle Options - sitio web desarrollado con aportaciones de personas que viven con la enfermedad de células falciformes y sus cuidadores (Español)

Publications

Sickle Cell Management

Evidence-Based Management of Sickle Cell Disease: Expert Panel Report, 2014 – Guidelines to help people living with sickle cell disease receive appropriate care by providing the best science-based recommendations to guide practice decisions. This publication was released by the National Institutes of Health.

The Sickle Cell Disease Treatment Demonstration Program was funded by the United States Congress in 2004 to improve the care of people with sickle cell disease. The 2017 congressional report details the many activities, outcomes, lessons learned and recommendations stemming from this work. 

Direct Service and Support Organizations

Direct Service Organizations

 
Name  City Phone Email 
Sickle Cell Association of Texas
Marc Thomas Foundation 
Austin 512-458-9767 or
877-994-4673 (toll free) 
info@sicklecelltx.org  
Houston 713-481-1295    info@sicklecelltx.org 
San Antonio 210-899-3928 info@sicklecelltx.org
Maroon 9  Fort Worth 817-797-2526 info@maroon9sicklecell.org
Sickle Cell Association of Houston  Houston  832-930-7224 care@sicklecellhouston.org

Support Organizations

 

Name  City  Phone  Email 
Sickle Cell Disease Association
of North Texas
Fort Worth 817-882-0990 Use form on Contact Us page.
As One Foundation Katy 832-308-9984 info@asonefoundation.org
Chris Johnson Foundation Sugar Land  832-721-8998 info@chrisjohnsonfoundation.org
SOS Parent Support Group Pearland  832-409-7671 Use form on Contact Us page.
Starlight Children’s Foundation Los Angeles, CA  310-479-1212 Use form on Contact page.
Sickle Cell Disease
Association of America
Baltimore, MD  800-421-8453 admin@sicklecelldisease.org

 Transitioning to Adult Care

 

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