Sickle Cell Resources

Sickle Cell: About ·  Types & Complications ·Trait   En Español


Living with and managing sickle cell disease:

Transitioning Stories

Sickle Cell Specialists in Texas 

Educational Information 

American Society of Hematology 

Centers for Disease Control and Prevention 

National Heart, Lung, and Blood Institute 


Sickle Cell Care

Evidence-Based Management of Sickle Cell Disease: Expert Panel Report, 2014 – National Institutes of Health (NIH) guidelines for providers to help people living with SCD get appropriate care.

Sickle Cell Disease Treatment Demonstration Program – National grant-funded program to improve the care of people with sickle cell disease.

Sickle Cell Disease Treatment Demonstration Program 2017 Congressional Report – A summary of the program activities, results, and take aways.

Sickle Options – Web guide to sickle cell disease and treatments

Sickle Options – sitio web desarrollado con aportaciones de personas que viven con la enfermedad de células falciformes y sus cuidadores (Español).

Community-Based and Direct Service Organizations 

Name City Phone Email
As One Foundation Katy 832-308-9984
Carol’s Promise Sickle Cell Foundation Arlington 469-509-8149

Chris Johnson Foundation Sugar Land 832-721-8998
Maroon 9 Fort Worth 682-200-9261
Melanie Dartest Chapter Sickle Cell Foundation Houston 281-858-1280
Sickle Cell Association of Houston  Houston  832-252-9293
Sickle Cell Association of Texas Marc Thomas Foundation

Austin (Headquarters) 


San Antonio

1-844-944-4673 (toll free) 

512-458-9767 (Austin) 

713-534-1712 (Houston) 

210-899-3928 (San Antonio)
Supporting Our Sicklers (S.O.S.) Parent & Guardian Support Group Houston and surrounding areas

Support Organizations

Name  City  Phone  Email 
Starlight Children’s Foundation Culver City, California  310-479-1212

 Transition to Adult Care

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