Resources for Parents

The Texas Newborn Screening Program tests for 24 secondary conditions and 29 core conditions.

How do I get my baby's test results?

You can get the results from your baby’s doctor. The results are sent to the doctor from the Texas Department of State Health Services (DSHS) laboratory in one to two weeks from date of collection.

What if the test is out of range or abnormal?

If a result is out of the expected range, newborn screening clinical care coordination staff will follow up with the baby’s doctor to make sure that the appropriate next steps are taken. The baby's doctor or staff member will contact the parents.

When an abnormal test result is received from the laboratory, additional tests may be needed. Staff from DSHS will follow up to make sure that the baby receives confirmatory testing and treatment if needed. Early treatment can help prevent serious complications such as growth problems, developmental delays, deafness or blindness, intellectual disability, seizures or even early death. Learn more about the program and view frequent questions.

Is more testing available?

DSHS screens for many, but not all, diseases your baby may have. More tests can be done. Ask your baby’s doctor, go to find a condition, or pregnant families for more information.

Financial Assistance

The Newborn Screening Program (NBS) Benefits program has limited financial assistance available for infants, children and adults diagnosed with an identified NBS disorder and is prioritized by need as funds are available. NBS Benefits is a payer if last resort. This means that all applicants first must apply for Medicaid, Children's Health Insurance Program (CHIP), and Children with Special Health Care Needs (CSHCN) before applying for NBS Benefits.

If eligible, limited assistance will provide:

  • Dietary Supplements (metabolic or low-protein foods) 
  • Medications 
  • Vitamins 
  • Confirmatory testing, evaluation, and follow-up care 
  • Reimbursement to specialists for telephone consultations 

Email NBS Benefits or call 1-800-252-8023 ext. 2983 for more information.

Additional information:

Congenital Adrenal Hyperplasia (CAH)

Things to Know about Cystic Fibrosis (CF) (PDF, English/Spanish)

Cystic Fibrosis Accredited Care Centers in Texas (PDF)

Galactosemia (GAL)

Hemoglobinapathy
    Alpha Thalassimia Trait (PDF)
    "F, A, Other" (PDF)
    Sickle Cell Disease 
    Sickle Cell Trait

Hypothyroidism

Phenylketonuria (PKU)

Severe Combined Immunodeficiency (SCID)

Websites

Baby's First Test: The nation's newborn screening clearinghouse - Facts, advice and support for parents and professionals.

Save Babies Through Screening Foundation - A non-profit organization that advocates for comprehensive newborn screening.

Newsletter

DSHS Newborn Screening Newsletter


External links to other sites are intended to be informational and do not have the endorsement of the Texas Department of State Health Services. These sites may not be accessible to people with disabilities.

Last updated August 8, 2018